Exploring disability advocacy through the lens of a Black journalist’s experience

Steven McCoy is a Black journalist whose hometown is Newark, New Jersey. However, New York City has been where he gained most of his work experience and considers it his second home.

McCoy has been living with Usher Syndrome, which affects his hearing and sight, for five years now.

“Living with Usher Syndrome is like getting a surprise sensory upgrade, it’s like my body decided to throw in some bonus features without my permission! The eye disease part is so rare, I started rockin’ hearing aids at the age of six, with the docs blaming it on my ‘frequent ear infections,’” he said.

He was more spontaneous growing up, until things changed. He now spends more time preparing for things.

“While I still enjoy some moments of spontaneity, my safety is a top priority in everything I do. So wherever I go, I ensure that there is necessary accommodation tailored to my needs,” he added.

The diagnosis changed his life for the better going forward, and he decided to keep doing what he loves.

“It was very scary to have to be honest and make the conscious decision to reveal my disability. I needed for safety to be a priority in my life. So, that meant advocating for myself and ensuring that whatever ground my feet touch, it’s safe and accommodating for me,” he said.

He found comfort in writing as a child, as he dealt with bullying during that time. This progressed into a passion for journalism.

“I turned to my composition notebook to pour out my thoughts through poetry, riddles, and short stories,” he continued. “It was in those creative moments that my love for writing blossomed. As I gradually emerged from my shell in high school, I felt a deep desire to connect with others through writing and speaking.”

In addition, he also eagerly interviewed his high school classmates in the hallways for the school’s newspaper.

Those experiences laid the foundation for his journey into journalism. “It literally fueled my passion to share diverse stories and capture the essence of human experiences through the power of words,” he added.

As he continued to grow in his career, he realized that while asking for accommodations, there was still a lack of accessibility. He also had to find new ways of navigation, which he got mobility training and also learned to advocate for himself.

Earlier this year, as a result of this, McCoy launched his nonprofit organization, Spoken Heroes, with his business partner. “I met my business partner at an event, who became a very close friend, and eventually went through the state to become my official Support Service Provider (SSP).”

The mission for the nonprofit is to bridge the gap between disabled and abled persons through technology, advocacy, and workforce development.

McCoy and his business partner are actively seeking to grow the team at Spoken Heroes, including positions on its board and opportunities for volunteers, and they welcome individuals from the disability community who are interested in joining the team.

The start of training sessions and seminars at Spoken Heroes, will begin with a three-day pilot program in just two weeks. The program will feature training sessions on assistive technology, advocacy skills, and a chance to connect with our heroes to understand their career goals.

McCoy stated that one key recommendation for organizations looking to enhance accessibility in their products, services, and events is to invest in hiring a DEI consultant.

“Having individuals with expertise in Diversity, Equity, and Inclusion is essential to ensure that all aspects of the organization are inclusive and accessible. At Spoken Heroes, we offer DEI, DEIA, DEIAB, and Sensitivity training to help companies and brands improve their accessibility practices,” he stated.

To the disability community, McCoy and his business partner want you to know: “At Spoken Heroes, we believe in the limitless potential within each of you. Your worth and identity should never be defined by others’ perceptions or mistreatment. You have the power to shape your own narrative and define the purpose and meaning of your life.”

He added that the organization’s doors are wide open to welcome you, support you, and empower you on your journey. “Together, we can create a world where all abilities are celebrated, and where your unique voice and talents shine brightly.”

For more information on available positions and how to get involved with Spoken Heroes, those interested can visit its website at www.spokenheroes.org, or reach out to the organization via email here: info@spokenheroes.org.